Colleagues,
I am writing to you to request your help in strengthening Ireland’s genetics and genomics services. As you may be aware, The National Genetics and Genomics Office (NGGO) is a new office of the HSE aiming to improve Ireland’s genetic and genomic medicine services as set out in the National Strategy for Accelerating Genetic and Genomic Medicine launched last December.
Ensuring patient and public involvement in genetic and genomic medicine
A key strategic focus of the National Strategy is in ensuring patient and public involvement (PPI) and partnerships. In alignment with this, the National Genetics and Genomics Office (NGGO) is seeking to strengthen and expand our PPI and engagement activities. Therefore, we are inviting people to express their interest in participating in future PPI and engagement activities, and to partner in the design, delivery and quality improvement of Ireland’s genetic and genomic medicine services.
How you can help us
We would be very grateful if you could share our short Expression of Interest Form with any individuals or networks engaged with your organisation or services in the hope of reaching as many interested people as possible. This may include further circulation with colleagues who may have contact with potentially interested persons, sharing online, on social media/LinkedIn or via other relevant communications channels.
For convenience, the EOI Form can be copied at the following link: https://surveys.hse.ie/s/NGGO-Patient-and-Public-Involvement-Interest-Form/
The below text may also be useful for sharing purposes:
The National Genetics and Genomics Office (NGGO) is a new office of the HSE aiming to improve Ireland’s genetic and genomic medicine services as set out in the National Strategy for Accelerating Genetic and Genomic Medicine in Ireland.
The NGGO is looking to connect with people living with a health or medical condition, carers, healthcare workers, and members of the public, who are interested in working with the HSE to ensure their needs, perspectives and voices guide the delivery of Ireland’s genetic and genomic medicine service.
If you would like to express your interest in participating in future patient and public involvement (PPI) and engagement activities, you can do so at the following link:
https://surveys.hse.ie/s/NGGO-Patient-and-Public-Involvement-Interest-Form/
Thank you for your support as we work towards developing a world-class, patient and family-centred genetic and genomic medicine service in Ireland. If you would like any further information on the National Strategy, our office can be contacted at Genomics.office@hse.ie.